Oft ist es schwierig, in Akutsituatonen den Rettungskräften die notwendigen Informationen zu geben.Der Ausweis listet alle Medikamente, Operationen und sonstigen Erkrankungen auf, die für eine optimale Versorgung im Notfall erforderlich sind.Sämtliche Marfan...
Unser Zoom-Plaudertreffen am 17.2.2021 war sehr interessant. Wir konnten 9 Mitglieder begrüßen.Viele Eltern mit Marfan Kindern leisten Erstaunliches, um ihnen ein gutes Leben mit der Krankheit zu ermöglichen. Meist ist ein Teil der Eltern selbst betroffen. Hut ab vor...
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